Chloe's Week!

Hello everyone, Sorry I have not posted I thought you guys were going to start sending me nasty emails because it is has been so long! Thank God Nicole had the baby this week she was so bored she was responding way to quick to these blogs lol. He is so cute!

OK so on Weds I went to pick the baby up from school and he was having a hard time breathing, Now that I think about it I maybe should have called 911 but instead I drove him to the hospital myself. Way to go Thea! I had to take Chloe with me because it was midday and everyone was at work. This never happened before because there was always someone to take her or I could get her out of the house before the ambulance would show up. WORST EXPERIENCE OF MY LIFE!! She did not do well with watching her brother tortured with blood work, IVs, breathing treatments and the suctioning machines. Oh god I would give anything for her to never see any of that again. She was yelling at them to get off of her brother because there was blood everywhere. The nurse cried and I kept trying to get her out of there but you could hear him in the hallways and she was not having it. At first I couldn't get a hold of Sean he was in a meeting but when he got there I said please just get her out of here and her response was " Are you going to cancel my birthday party"? So at this point I am just a mess, the baby is a mess, Chloe is still crying, and Sean is sitting there completely helpless because he didn't witness any of this. We assured her that her party was going to go on and sent her on her way.

They finally got him under control but his breathing just would not improve so you know that means ICU. All I am thinking is dear god please get me out of here I just get crazy when we have to stay you think I would be used to it but I just cannot do it. He is sooo bad in the hospital, he hates hates hates to be out of his environment and I don't blame him. He never sleeps and he is so bored. I spoke to the ICU Dr on the phone and begged her to get him out of there as soon as possible which she agreed that in the morning if he came off the oxygen we could go. At 3 am I take the oxygen off of him because super nurse was afraid but I know my child if you give him a inch he takes a yard, I knew if they left that oxygen on his would not try he would just let it do all the work. As soon as I took it off he looked at me and laughed and started breathing fully on his own! TOLD YOU SUPER NURSE!

So Thurs. morning the Dr comes in and says I can go!!! Yeah! I had to get home and get ready for my Mother in law and nephew to fly in. Flight was delayed an hour blah!

Friday was Cj's actual birthday and she went to school because she was also having school pictures that day. I went to the school for her classroom birthday party which was really cute. I love her teacher and so does she not as much as Owen(that's a whole blog in itself).

Sat was her birthday party at Jump and Slide, I think everyone had fun including the adults! There was so much for them to do and she had a great time.

She was so excited to see her grandma and cousin, her, party, the gifts, and her Choc late with chocolate cake. lol

My baby is turning 4

Well well well.. what a week! I am so exhausted it has just been crazy with dr. appts, new meds,the kids home from school. This weekend I have been preparing for Chloe's 4th birthday and her first real birthday party. She is so excited and has no idea that her grandma is flying in, her new Nintendo DS, her dollhouse, and the 4 shots she is getting on the 23rd LOL.

Sean and I really thought it was important to make her feel special this year, after all her life is not easy(even though she is spoiled) I think sometimes people forget about the siblings when you have a special needs child. I know she is very smart and aware but she still needs her time away from chase and by herself. It has been a real struggle with me to divide my time between them. I just pray that when she gets older she knows that I wasn't ignoring her I just needed to give Chase all the help he needed at the moment. She is a very helpful girl with a huge heart who knows way to much about medicines, machines and CP. Maybe she will be a doctor one day!

I have to admit that I feel like I missed out on a lot of her this year. I cannot beat myself up over it! It was something I had to do and hopefully when she is a mom she will understand it all!

WOW 4!!! I feel like I just held her for the first time in the NICU thinking she is so tiny and i hope she grows into that nose!lol. She did it is so cute now. OK hope everyone has a great week.

Back to Bethesda we go

Just a quick update, Chase was admitted back into the hospital last night with RSV and pneumonia. He will probably has to stay until Tues. He is still in good spirits and really tired because they are always poking at the poor thing.

OK I really need to go to bed, I am beyond exhausted. Sorry there is not a lot of info. I will be back on Tues.

Hospital days.

Well what a week it has been! We stayed in most of the weekend because it has been so hot here and taking the kids out in this heat is not really great for either of their lungs. On Tues Chase was supposed to go back to school but he woke up around 7 am looking ...lets say a little blue around the mouth. I gave him a couple treatments and we decided it was best for me to head to the hospital just to be safe.

Luckily I wasn't there very long they got in under control and I was released, his chest x ray looked good. So he is back in school and doing OK, we are going to look into a respiratory therapist to come to the school and do treatments to him there.

On a really good note I spoke to Michelle who has been helping us with the van and we are meeting the man tomorrow at 10 am. I am sooooo excited!!!! I can't believe this is happening to us. I lay in bed at night wondering how I am going to let this man know how truly grateful I am.

OK I really have to clean in case we get this hurricane! Hope everyone is doing well, I miss everyone in Jersey so much!!