So here it is 11:45 on the night of my birthday, in 15 minutes I will be closer to 30! I really thought a lot today this is the first time Ryan and I have ever been apart for our birthday, so weird. From what I hear she had a birthday cake that said Happy Birthday Thea and Ryan! My mom is too cute!
I did not really do much today except food shop and spend sometime with the kids. Chase is still recovering but has developed a nasty cough today of course today when our checkup at the Dr was yesterday!!! Hope it is gone by Tuesday. He ate a whole big pancake and I was just amazed at the fact that 3 weeks ago he could only eat pureed food and if it had any texture he would vomit. He is becoming such a big boy, it makes me sad! I tried a new sippy cup and he smacked me sooo i don't think he likes it( i think Chloe taught him that and if she didn't I will still blame her for corrupting my boy) Ohhh and he learned to shut the light switch off it scares the crap out of Chloe and when she screams he cracks up, nothing like torturing the princess. I guess that's what brothers are for.
Ok i think I am going to head to bed for 20 mins before he gets up again.LAST NIGHT HE GAVE ME A BIRTHDAY PRESENT TOO HE SLEPT ALLLLLLL NIGHT!!!!
Goodnight and thank you all for my birthday wishes!!! Love you
Saturday, August 30, 2008
Thursday, August 28, 2008
Oh my word!!!!!
You are never going to believe this!!!!!!! So I walk into Easter Seals(Chase's school) yesterday and some people were waiting for me...hmm what's going on????? They ask me to come in the back and they proceed to tell me that there is this very nice man in West Palm Beach that would like to GIVE us a 2005 Honda Minivan with 19,000 miles and a wheelchair lift for Chase For FREE did you hear me FREE!!!! I stood there completely in shock crying my eyes out for like a half an hour. Are you serious????????
A few weeks ago Sean tells me that the air conditioner is his car broke so he has been driving back and forth in the Fl heat with a shirt and tie on. So you can imagine the excitement inside of him when I tell him that he is getting my SUV and I am getting this new car. No more squeezing into my little beat up cavalier .
We have come across so many nice people since our Chase came home.We are so grateful for everything that has been given to us or done for us.
A few weeks ago Sean tells me that the air conditioner is his car broke so he has been driving back and forth in the Fl heat with a shirt and tie on. So you can imagine the excitement inside of him when I tell him that he is getting my SUV and I am getting this new car. No more squeezing into my little beat up cavalier .
We have come across so many nice people since our Chase came home.We are so grateful for everything that has been given to us or done for us.
Sunday, August 24, 2008
Chase's conditions
OK people here it is! People often ask me what is wrong with him, and will it change? Here are the answers.
He is a 28 week preemie born at 2lbs 15oz. He spent 21 days on life support and in his 9 week and 5 day hospital stay he suffered a collapsed lung, pneumonia, some damage to his right eye from too much oxygen, plenty of blood transfusions, a heart condition, brain damage, and apnea spells. When he left the NICU he was on a Apnea machine at home and 24 hour Oxygen.
Today he is better and a lot of things have cleared up. The heart condition resolved itself(thank god!), no more oxygen, He had the surgery on his right eye and now that is better( a little wacky at times but we are working on it).
Are big concerns at this moment are the Cerebral Palsy that he developed from the brain damage. That will never go away but with therapy it makes a huge difference (today we do 5 days of therapy). His lungs seem to give us the most problems of everything, he is still recovering from pneumonia as I write this. We do daily breathing treatments and lots of suctioning. We are unsure of where we stand in the future with the lungs, hopefully it will get better. I feel at this point his hearing is getting better and better by the day ( oh did i mention the hearing up top? ohhh whatever .. that too.)We returned the hearing aides months ago because they did not work he heard better with out them. His eye really does need to be fixed but right now that is not a concern of mine.
As of a few weeks ago we started the process on the wheelchair( nobody will ever tell you if your child will walk in the future! every child is different, BUT my kid has determination and I know one day he will walk, and I FIRMLY believe that). He wear orthotics on a daily basis and is starting to stand with his brace. Overall he is the happiest kid I know, growing more than he should be at his point(Thanks Sean!). Our only rough area is sleep it is still like we have a newborn around every few hours he is up. But one look at that smile and you forget about everything.
I will continue to update as much as I can. Thanks for reading
Wednesday, August 20, 2008
Chase John
April 2006 Sean and I talked about having another child possible someday and that we would probably really start trying in a few months,as some of you remember it took a little while for Chloe so we thought the same thing would happen. Little did we know!!!!!
I went for my annual checkup on April 28th to find out that I was pregnant!!! Whoa! I was so shocked,excited,nervous, and scared to death. What if I had another preterm baby? What if I went sooner than 30 weeks? What if this was a boy(boys never do as good as girls in the NICU)?What happens to Chloe if I have to go on bed rest? Am i going to have to leave my job that I loved? Was my husband going to freak the hell out when I told him?
Left the Dr. in freak out mood. Went straight to my Mothers house to tell her and my sisters. Sean came home about 3 hours later as he walked in I told him I'm Pregnant! His response was " I Know" the air conditioner keeps getting lower and lower. Gotta love him!!! We sat and talked about the worries and what could happen. At times I thought I was crazy for doing this again. But just like every other mother i forgot how painful the NICU was, and how hard it is to go home without your child every night. All i thought about was how healthy Chloe was and the pure joy she brought to all of our lives. As we sat on out couch thinking how lucky we were to get pregnant again after all these Dr's kept telling us we are not completely sure you will ever have kids.
So the days progressed and I had some ultrasounds and spoke with my Ob( who I loved and my family hated) about the upcoming months. She thought it would be best for me to see a perinatologist(Dr. Patel) and to take all precautions just in case i was earlier than 30 weeks. The days went on and i saw Dr. Patel weekly, the OB for steroid shots and I had a cerclage put in at 20 weeks. 21 weeks Sean and I went to Patel's office to confirm we were in fact having a boy! Right away the talk came about how boys don't do as well and to prepare for that. HOW?? I DON'T KNOW.
We went to NJ for our last trip before the baby came knowing it would be a while before I saw my family, friends, nephews and god children. Returned to Florida to loose my job and be put on bed rest a week later. I really did try the bed rest thing as long as I could but it was very hard with a 1 year old running around. She really did do well with all of it though. We was just excited to be a big sister.
On October 8th i woke up in a lot of pain very uncomfortable I stayed in bed and cried because I knew it was time but what was i going to do I was only 28 weeks!!!!!! I walked over to my mother's to ask her to watch Chloe and explain what was going on. I called my ob and of course it is a holiday weekend and she is on vacation! Just wonderful! ok than I will call Dr. Patel.....nope on vacation! I arrive at West Boca Medical at 11am for them to confirm I am in labor. Sean and I said nothing to each other we just knew what we were in store for.
They tried to stop the labor but it was never going to happen it simply was just time( i will NEVER explain the whole labor story we would be here for days) They wheeled me into OR at 12:00 am and I delivered a 2lb 15oz baby boy at 12:07 am. All i know is that Sean's gave it all way and I just knew something wasn't right, he couldn't look me in the eye. He told me everything was GOING to be ok. At that moment my life changed and will never be the same I have this amazing new life but what does the future hold??????????
I went for my annual checkup on April 28th to find out that I was pregnant!!! Whoa! I was so shocked,excited,nervous, and scared to death. What if I had another preterm baby? What if I went sooner than 30 weeks? What if this was a boy(boys never do as good as girls in the NICU)?What happens to Chloe if I have to go on bed rest? Am i going to have to leave my job that I loved? Was my husband going to freak the hell out when I told him?
Left the Dr. in freak out mood. Went straight to my Mothers house to tell her and my sisters. Sean came home about 3 hours later as he walked in I told him I'm Pregnant! His response was " I Know" the air conditioner keeps getting lower and lower. Gotta love him!!! We sat and talked about the worries and what could happen. At times I thought I was crazy for doing this again. But just like every other mother i forgot how painful the NICU was, and how hard it is to go home without your child every night. All i thought about was how healthy Chloe was and the pure joy she brought to all of our lives. As we sat on out couch thinking how lucky we were to get pregnant again after all these Dr's kept telling us we are not completely sure you will ever have kids.
So the days progressed and I had some ultrasounds and spoke with my Ob( who I loved and my family hated) about the upcoming months. She thought it would be best for me to see a perinatologist(Dr. Patel) and to take all precautions just in case i was earlier than 30 weeks. The days went on and i saw Dr. Patel weekly, the OB for steroid shots and I had a cerclage put in at 20 weeks. 21 weeks Sean and I went to Patel's office to confirm we were in fact having a boy! Right away the talk came about how boys don't do as well and to prepare for that. HOW?? I DON'T KNOW.
We went to NJ for our last trip before the baby came knowing it would be a while before I saw my family, friends, nephews and god children. Returned to Florida to loose my job and be put on bed rest a week later. I really did try the bed rest thing as long as I could but it was very hard with a 1 year old running around. She really did do well with all of it though. We was just excited to be a big sister.
On October 8th i woke up in a lot of pain very uncomfortable I stayed in bed and cried because I knew it was time but what was i going to do I was only 28 weeks!!!!!! I walked over to my mother's to ask her to watch Chloe and explain what was going on. I called my ob and of course it is a holiday weekend and she is on vacation! Just wonderful! ok than I will call Dr. Patel.....nope on vacation! I arrive at West Boca Medical at 11am for them to confirm I am in labor. Sean and I said nothing to each other we just knew what we were in store for.
They tried to stop the labor but it was never going to happen it simply was just time( i will NEVER explain the whole labor story we would be here for days) They wheeled me into OR at 12:00 am and I delivered a 2lb 15oz baby boy at 12:07 am. All i know is that Sean's gave it all way and I just knew something wasn't right, he couldn't look me in the eye. He told me everything was GOING to be ok. At that moment my life changed and will never be the same I have this amazing new life but what does the future hold??????????
A letter from the Chimenti's
OK I swore I was going to do this for so long! Here it goes... I must let everyone know from the start that I am terrible at writing but i feel this will be the easiest way to update everyone on the Chase (and Chloe James too).
All I ever hear is my phone ringing, AOL saying you have mail and people complaining that my mailbox is full. It is so hard to explain things over and over(especially the hard days) but I know how much everyone cares so I try my best.
Sean and I could have never come this far without the help of our parents, siblings,friends,coworkers,teachers, Doctors and his therapists. This has been such a up and down 22 months. We never thought this would happen to us but we do realize that this situation could be much worse so we are extremely grateful for our wonderful children.
I will try to update as much as I can just give me time to learn all this stuff. Thanks for looking and leave me comments on how I am doing.
We love you all
Thea
All I ever hear is my phone ringing, AOL saying you have mail and people complaining that my mailbox is full. It is so hard to explain things over and over(especially the hard days) but I know how much everyone cares so I try my best.
Sean and I could have never come this far without the help of our parents, siblings,friends,coworkers,teachers, Doctors and his therapists. This has been such a up and down 22 months. We never thought this would happen to us but we do realize that this situation could be much worse so we are extremely grateful for our wonderful children.
I will try to update as much as I can just give me time to learn all this stuff. Thanks for looking and leave me comments on how I am doing.
We love you all
Thea
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