Some videos of my crazy kids!!!

Just an update.

Hi everybody!!! Just a little update. Chase is doing really well lately. The new meds for his sleeping have finally kicked in and he has been sleeping for quite a few hours at night. It feel so good to sleep again. He is happier and has been really healthy overall we did have some problems with seizure like activity again but they uped his meds and he seems to be doing great.

My new van is sooo great and it was a little chilly today so I used my heated seats!!!!!! whoaaa. I heard it is so cold in NJ and I def. don't miss that! Tomorrow I am taking the kids to get there xmas pics done with my friend Stacy who also allows me to work for her so I can earn extra cash and I love her for that. This year we are having rock star xmas! lots of plaid and spiked hair sooo fun. Oh and the Halloween party went off great!!

As some of you know I have cancelled my myspace, it is a long story but I will come back on in a few weeks. I have lots of pics and videos so let me post them now. Miss you all!!!!

My sweet husband.......

So lately I have been having a hard time accepting a situation. Last night I was explaining to Sean that I just feel like people blow Chase off because he can't talk,walk, react or understand a lot but he is still a human being and he still has feeling. It just really hurts me and maybe I am just over reacting but I feel like it happens a lot. People will look at him and then go right to Chloe or only talk to Chloe like I am not holding him in my arms.

And he does understand. My sister Jamie will call just to talk to him and he reacts to her like crazy. He knows her voice and you can see him just light up. he loves to tell her HI over and over and even though that is all he can say she doesn't mind and he thinks it is great. I wish everybody understood him like Sean and I do.

Well I just opened my email from my husband who is trying to make me feel better and found this( he might be mad at me but I asked him where he found and he wrote it and I think it is really cute and to the point)

Just Because He Can't

Just because he can't say hi,

is that a reason to not see him?

Just because he can't say Thank You

is that a reason to not give to him?

Just because he can't say how much he misses you

is that a reason to not call him?

Just because he can't catch a ball

is that a reason to not play with him?

Just because he can't kiss you

is that a reason to not kiss him?

Just because he can't read

is that a reason to not send a card?

Just because he can't squeeze you back

is that a reason to not hug him?

Just because he can't say I love you

Doesn’t' mean you shouldn't tell him.......

Sorry it has been a while.

Life has been so crazy. Chase never sleeps and I know that you think I am kidding but I am really not. I have tried Motrin, Benadryl, muscle relaxers, weighted blankets, putting him in my bed,music,TV, and sedation medicine that they give you before surgery ( ALL WITH THE OK FROM MY DR OF COURSE) and Nothing!!!!!!!!! right now he is sleeping in this hugggge bean bag chair that I borrowed from Easter Seals. We will see!

Other than that he has been pretty healthy over all just the sleep stuff. I have the kids pumpkin decorating party this weekend so that should be fun. I am so ready for winter here. It is just still so hot. I like it but cmon already like cool off just a little!!!

Chloe had a birthday party this weekend and had a lot of fun. It is nice to go out with just her once and a while. She is being a very good girl lately and so helpful she just really misses our family in NJ a lot she tells me everyday but is starting to blame me less and less so that is good. LOL.

Miss Deb is back and that makes Chase so happy! Although he really loves his Miss Shari so Deb better watch out she has some competition!!! His other teacher is leaving in Nov. for a very long vacation and he will miss her she make him the best smoothies! I went to his school today for firetruck day it was cute but he was very nervous. I think he thought it was the ambulance coming for him. I hate that he actually knows that sound and knows that it is not good. Oh and he is standing in a stander machine sooo awesome!

I have a farm breakfast for Chloe on Weds. and the horses coming to Chase's school that day too. So supermom will spring into action and try to do both. Should be fun. Up the bean bag didn't work! Gotta go!

I have a new car!!!!!!

First of all Thea Chimenti drives a minivan. WHO would of thought??????? But I am so grateful for this car and it is some car! It is all leather,DVD player, navigation system, xm radio,heated seats and mirror, a sunroof, awesome radio, and the best part is a great wheelchair ramp for my oh so precious little boy.

I was starting to wonder about people whether there was still good people out there and boy did god show me I was wrong. Mr. Snow and his family are the nicest people. I cannot believe they would just hand over this car without asking for a thing in return. I am just so amazed I don't think people realize how truly happy I am. I will make sure that Mr. Snow knows just how grateful we are.

I cannot go without saying thank you to Laurie and Michelle at Easter Seals because they were the ones who nominated us. If it wasn't for them this would have never happened. Thank You Thank You!

I just have to register the van and go get a handicap thingy for Chase. Oh and CJ think our vini van(lol) is cool. She loves the TV and the sun shade

Chase's Birthday!

WOW! I cannot believe that my baby is 2 today!!!!! I can't believe how emotional I have been this week leading up to this day. I guess what is bothering me the most is the fact that you know a preemie usually catches by the age of two. Don't get me wrong I am fully aware that my son has issues and the denial phase is over for me but sometimes I think I just want it to be different. I love him so much and I just want him to experience all the fun stuff kids do. Even though he always appears to smiling and laughing.

He has been out of school for the last two days because he is not feeling 100%. Not sure if he is just trying to catch up on sleep. Plus he has a ton of teeth coming in as well. He is having a party at school tomorrow so I will head out later to make a cake for his party. We are going to do some pumpkin picking this weekend with them in bathing suits because it is just so hot still!

We are talking about possible coming home in Jan. so I will let everyone know the details when we figure it out.

Have a great weekend and enjoy your family!

Thea

Ohhh man

I just need to let this out!!!! badly! I really really dislike it when people don't listen to what I say regarding my children especially Chase. I feel like they think I have no idea what I am talking about and I am some idiot who just became a mother.

Listen people I was put on this planet to be a MOTHER apparently god wanted me to have this special needs child and thinks I can handle it. Just because you went to school to be a Dr or a nurse doesn't mean that you know MY child's needs. This is my job and I WILL NOT do it poorly!I am so tired of Dr's not listening to me from the start and nurses thinking that a degree makes them smarter than me. Well I may not have a degree but I am the CEO of the Chimenti household and walk one day in my shoes or any mothers shoes that has a special needs child and I bet your attitude changes real quick. And just for the record I am not saying this about every Dr that we have but I just wish they could spend the day here so they know what is going on at home not just the 15 mins that they see them.

Ahhhh ok I feel better now LOL. thanks for listening to me rant.

Chase and CJ update.

hello everybody!!!! I hope you are all doing well. Chase has had one of his best weeks yet. He is feeling really good and happier than ever. I hope it stays this way, the Dr. increased his seizure meds so hopefully that is doing it's job. And I am so excited to say his 2ND birthday with him next week. Poor child has had the craziest 2 years but maybe 2 will be his lucky number. Did I ever tell you how cute he is???? I don't know what is cuter his Mohawk, his blue and green eye, or his little square sponge bob teeth( i think I will go with his teeth you know how i feel about them).


Today I took Chloe for her 4 year old checkup and some shots and walked out with 5 prescriptions!!!What the hell! her left lung is really bad so they are trying to prevent her from pneumonia. I looked at the Dr. like hello she is my healthy kid this can't happen. So we will see what happens after we get the steroids, inhaler, and singular in her system. I sometime forget that Chloe was born 10 weeks early too! She has always been a fighter and so strong from day one. She is so sweet lately she always tells me that I am the best mom in the world and thanks me for everything. The other day she thanked me for always taking her to fun places, and cooking her good food and get this "thanks for taking me to Kohl's and CVS the other day" LOLOLOL.

Ahhh ok i have meeting at Chase's school with the lady in charge of events. Oh and No van yet for those of you who asked. Maybe next week.

LOVE YOU ALL!!