Hello. I was hoping to write today's blog with excitement. I thought by now we would have heard from Duke University regarding Chase and his stem cells. However I did speak with them today and they do tell me it should be about another 3 weeks before we hear back from them.
The anticipation is killing me. I just want what is best for him even though I do know that they could always say he is not a candidate. Which is O K.
Both kids are still sick from NJ. They have nasty colds that we still can't get rid of. The baby has had two rounds of steroids and a steroid shot and he is still struggling at times to breathe. Chloe has been having her treatments every 4 hours and using her inhaler quite a bit. I hope one day their lungs will grow stronger.
Chloe started Easter Seals when we returned from NJ and she is doing really well and loves it. Along with Chase she has been receiving therapies a few times a week. She was just diagnosed with Sensory Dysfunction Disorder which we kind of new along that something was up with some of the behavior but unfortunately we kind of pushed it aside because we had so much going on with Chase that it wasn't on my top list. We are now making Chloe disorder a high priority in our lives. As she is getting older we realized that we need to get this under control. I never understood how painful the disorder can be for her until I sat down with the therapist who is taking her on. It kind of makes me sad and mad at myself for ignoring all the warning signs and not speaking up for her when she needed me to. :(
If and when I hear from Duke I will post as soon as possible. I hope it is good news.
And to my family in NJ we are almost entering March so the nice weather is right around the corner hang in there!!!!! Or visit and enjoy the weather here. LOL
Love you!
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