

OK people here it is! People often ask me what is wrong with him, and will it change? Here are the answers.
He is a 28 week preemie born at 2lbs 15oz. He spent 21 days on life support and in his 9 week and 5 day hospital stay he suffered a collapsed lung, pneumonia, some damage to his right eye from too much oxygen, plenty of blood transfusions, a heart condition, brain damage, and apnea spells. When he left the NICU he was on a Apnea machine at home and 24 hour Oxygen.
Today he is better and a lot of things have cleared up. The heart condition resolved itself(thank god!), no more oxygen, He had the surgery on his right eye and now that is better( a little wacky at times but we are working on it).
Are big concerns at this moment are the Cerebral Palsy that he developed from the brain damage. That will never go away but with therapy it makes a huge difference (today we do 5 days of therapy). His lungs seem to give us the most problems of everything, he is still recovering from pneumonia as I write this. We do daily breathing treatments and lots of suctioning. We are unsure of where we stand in the future with the lungs, hopefully it will get better. I feel at this point his hearing is getting better and better by the day ( oh did i mention the hearing up top? ohhh whatever .. that too.)We returned the hearing aides months ago because they did not work he heard better with out them. His eye really does need to be fixed but right now that is not a concern of mine.
As of a few weeks ago we started the process on the wheelchair( nobody will ever tell you if your child will walk in the future! every child is different, BUT my kid has determination and I know one day he will walk, and I FIRMLY believe that). He wear orthotics on a daily basis and is starting to stand with his brace. Overall he is the happiest kid I know, growing more than he should be at his point(Thanks Sean!). Our only rough area is sleep it is still like we have a newborn around every few hours he is up. But one look at that smile and you forget about everything.
I will continue to update as much as I can. Thanks for reading
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